Thursday, March 26, 2009

Praises to share!

We had our follow-up appointment today with the plastic surgeon and the mole was completely removed, and the pathology was good and proved it was a benign Spitz nevis.

Second, the MRI results came back clear.

Third, Annabelle is doing well since coming off her steroids. We see no changes and pray for her immune system to continue to heal completely.

We have rescheduled our trip to Springfield, IL. The spinal tap will be next Tuesday, April 7th.

Please pray:
-- For Annabelle not to be afraid. She is more aware now than last year and recognizes what is coming.
-- For the coming out of the general anesthesia. She did well with the MRI, but it was a different drug than what Dr. P uses. She didn't do well back in Sept.
-- Protection from illness while in the hospital and offices the whole day.
-- Safety traveling.

Monday, March 16, 2009

Happy Days!!

Friday's MRI and mole removal went well. We were scheduled for 1:00 but didn't actually start until 2:30. Annabelle hadn't eaten anything since the night before, and amazingly she never mentioned food or being hungry once! She did seem tired, quiet, and a bit nervous the whole morning. About every half hour she'd say, "Mommy, you go with me?" It was so sweet and sad because I had to tell her that I could only go so far with her and then she had to go with the doctor. When the time came, the surgeon carried her bouncing and trying to keep her from totally losing it. She did pretty well at keeping under control. She is such a trooper. Her scar on her cheek looks pretty good. I think it will heal pretty well and not be too traumatic for her down the road.

Now, we will wait for results of the MRI and mole biopsy. Hopefully, they got it all and we won't have to repeat the process!!

On another note - we finished her shots this week and said goodbye to the blood pressure machine, calcium, and Zantac that she had to take because of the steroids!!!! We are greatly relieved to be off of the ACTH and are greatful for the prayers and protection we have recieved while on it. She did not suffer the negative side effects that were possible. We know that prayer made a difference. THANK YOU!

I'll update the blog with the results of her test when I get them both.

Monday, March 2, 2009

March Madness

Well, it has been a month since my last post. No news is good news. Annabelle continues to stay well and taper off her meds. This month marks a big milestone in her treatment. We stop her ACTH shots on March 10th!!! This is a huge blessing. We are very excited to be done with steroids for awhile - maybe forever! I wanted to give a list of events this month as it is a busy one. Here are somethings that we would appreciate prayer for:

March 3 - Monthly infusion at Children's Hospital
March 10 - Last shot!!
March 13 - MRI and mole removal on her cheek. This is always hard to have her put to sleep.
March 30 - Travel to Springfield, IL to see the specialist who diagnosed her. She will have a spinal tap to check her b-cell counts (asleep again). Hopefully they are still great.

We appreciate and covet your prayers. Thank you.

"Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword?" Romans 8:32, 35