Thursday, May 29, 2008

More fevers

Update: Fevers are gone. They were short with no other symptoms - Praise the Lord. Annabelle hasn't gotten one yet - PTL! Thanks for your prayers. I have never seen such short lived fevers before. The last two Alexandra had only lasted a day and were gone. Prayer is the only explanation I have.

Just a quick note: Alexandra has another fever and went to grandma and grandpa's house. I also have a slight fever as well. Please pray that these pass quickly, and that Annabelle will be protected. Alexandra and Annabelle played together this morning. So, I'll be watching her as well.

Wednesday, May 21, 2008

Some Fun Times

The girls love being outside!!!

Sunday, May 18, 2008

A headache on this beautiful Sunday

Second Update: This morning the fever is gone!! We are relieved. If it is viral, it may return this afternoon/evening. But, maybe it is gone for good.

Now she has a fever of 99.8. Please pray it doesn't go above 100.4. She is fussy, and we are hoping it is nothing serious like an infection of her port that was accessed on Thursday.

Annabelle has a post infusion headache today. I thought we were clear of it, but it came on this morning. Please pray that it will respond to Tylenol. The first dose helped a little, but she has been fussy and not herself all day. She doesn't have a fever, but she randomly grabs her head and cries. We are a bit surprised. Normally, when she is pretreated with meds, she doesn't have any reactions later. I guess reactions happen on a case-by-case basis. Thanks for your prayers.

Wednesday, May 14, 2008

Monthly Infusion Tomorrow

Update: The infusion went very smoothly. Yay!! It was the best one yet (no known exposures to anything, no ripping out the IV line, no negative reactions, started by 9:00, home by 4:45pm). We are thankful for the helpful nurses there; they really try to help in anyway possible. Thanks for your prayers.

Tomorrow is our IVIG infusion, and we are hopeful that the day will go smoothly. We were able to work out some of the details of Dr. Pranzetelli's protocol that have been a struggle with our Neurologist and the clinic here.

- Annabelle didn't get chicken pox from the last infusion.
- She has been completely healthy despite some colds and a small fever in the house.
- Her well-check up showed her height and weight were completely on target for her age at the 45 and 5o percentiles. There doesn't seem to be any growth suppression or weight gain from the steroids she is on. Praise the Lord.
- Developmentally she she is also doing very well. We praise God for his protection over her little body.

Please pray for:
- safety from germs.
- Annabelle to tolerate the infusion and the medications they give her to help her body accept the blood product without a reaction.

Thank you for your prayers and interest. I'll update you on how it goes.

Romans 8: 35
"Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution
or famine, or nakedness, or peril or sword"

Friday, May 9, 2008

Teacher Appreciation Week

Today, the women's ministry at my church delivered adorable cookie bouquets to teachers for Teacher Appreciation Week. They even delivered them to homeschool teachers! My bouquet had a tag that read:

"Thank you for following God's leading, and for all you put into your children each day!
"Let us not become weary in doing good..." Gal. 6:9

One of my loving students piped up and said, "Why are they giving you one? You're not a teacher." After I rearranged her teeth and she cried a bit ;), I gently explained that I AM a teacher even though my degree isn't in elementary ed. You see, I can even think sometimes that because I don't hold a degree in education that I am not a teacher. But when I became a mother, I became a teacher. And when my children were old enough, we added academics. Do I have great methods or delivery? Do they always get what I'm saying? Do they perfectly obey or get along? No, No and No. As I thought about being a "teacher" today, it humbled me to think that God has given me this responsibility and privilege. I don't feel very qualified or deserving, but I love to make an effort, pray for the outcome, and watch the Lord bless.

Thanks to the Maranatha Women's Ministry for the cookies and the reminder of Gal. 6:9! My "students" and I enjoyed the treat.

Sunday, May 4, 2008

Fever In the House

Update - Wednsday, 2:30pm:
Alexandra came home last night. Thankfully, her fever was very mild and short lived. The rest of us seem to have minor cold symptoms - except for Annabelle!!! She is well. Amazing huh! Thanks for the prayers. God is so good.

Update - Monday, 2:00pm:
My mom came and took Alexandra to the doctor's for a strep test (Thanks Mom!). It was negative. She probably just has a virus. So, she will stay away until the fever is gone. Thank you for your prayers - we appreciate each one of them.

Sunday night:
Tonight Alexandra has come down with a fever 100.6. This amazes me - first because she has been out VERY little, and we are so careful about germ control at home. And second, of all people to get sick, I would think it would be Annabelle first with her low immune system. The bottom line is God in is in control, and we trust his plan. Alexandra is home tonight, and we will evaluate her in the morning and possibly take her to the doctor.

Please pray for:
- wisdom with what to do (quarantine her or send her to Gma and Gpa's).
- protection for Annabelle and the rest of us.
- healing for Alexandra.

Praise God:
- so far no Chicken Pox.
- Annabelle is doing so well (no real visible symptoms).