Update: The infusion went very smoothly. Yay!! It was the best one yet (no known exposures to anything, no ripping out the IV line, no negative reactions, started by 9:00, home by 4:45pm). We are thankful for the helpful nurses there; they really try to help in anyway possible. Thanks for your prayers.
Tomorrow is our IVIG infusion, and we are hopeful that the day will go smoothly. We were able to work out some of the details of Dr. Pranzetelli's protocol that have been a struggle with our Neurologist and the clinic here.
Praises:
- Annabelle didn't get chicken pox from the last infusion.
- She has been completely healthy despite some colds and a small fever in the house.
- Her well-check up showed her height and weight were completely on target for her age at the 45 and 5o percentiles. There doesn't seem to be any growth suppression or weight gain from the steroids she is on. Praise the Lord.
- Developmentally she she is also doing very well. We praise God for his protection over her little body.
Please pray for:
- safety from germs.
- Annabelle to tolerate the infusion and the medications they give her to help her body accept the blood product without a reaction.
Thank you for your prayers and interest. I'll update you on how it goes.
Romans 8: 35
"Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution
or famine, or nakedness, or peril or sword"
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