Okay, I'll start with a praise - we are headed to Springfield on Wednesday for a Thursday apt. starting at 7:45 pre testing, 9:00 Doctor. apt and 11:00 sedation and spinal tap. This is good because originally they couldn't see us until Feb.12th. They will be looking very specifically for elevated cell counts. If she has elevated counts, they will assume that some tumor is present (dispite all of our negative tests) or has been eradicated by her immune system. If they find what they are looking for, her treatment plan will be quite extensive. I will explain all of that if we have to go down that path. The place we are heading to specializes in Opsoclonus Myoclonus Syndrome. It is a rare disease that strikes healthy children. I am giving the link for those interested in learning more.
We are hopeful that, as scary as this all is, we might find an answer that will help our little girl.
http://www.omsusa.org/
Please pray for :
- our insurance to approve us tomorrow for this trip and the necessary drugs which are very expensive.
- our health - so we wouldn't expose Annabelle to anything during immune suppression.
- our minds - that we would trust our Sovereign God's plan for her life no matter what.
Thank you all for the support, encouragement, and prayers - we have been so blessed to have friends and family like you all. I will try to update my blog regularly to keep you all informed.
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